Last half a year
Thanks to you I won´t be taking mud inside in the winter. Thank you for the new parking spot and the new sign. Boriiiiik, do not step on my new grass! I live here! When watering the grass, our green car is parked at neighbors... Summer is just great! Guess, where am I? In the pond Maranek with my gang. Dad remembers when there was water in... I don´t really believe him, the grass is so high. Neighbors from Zbuzany started to look after our village, isn´t it great?! Dad, what is the pressure of my tires? Is it ok? Will I make it out? And when will I have the cross-country wheelchair? That is a nice group of kids at the new bench, right? But to get here my yellow-one is really hard work! The grass is grown, so I am going to train the drifts. Sometimes dad´s waters the road so that it is faster :D I reaaally enjoy it! Who has bigger eyes than me?! Oh yeah, when we get together with my buddies at my table, it is a lot of fun :) We are going to Belgium. An adventure ahead of us. We have one-day delay and thus we have to drive for 8 hours the first day. It is difficult, but our crew is great! We have everything, most importantly Aka, which is vital for Borik. Our first stay was not completely without barriers, nevertheless, it was very nice!!! The rides were really fun! I made some nice holes in the gravel :) We took a family picture in the sunshine and quickly off to the hospital for check-ups. We were not interested in the photographer, but the bakery was delicious! We forgot to send a package to our friends, so we are going to do it now. Fish soup in Liege for strenght before check-ups. So tasty!!! Brilliant news!!! In February I will hopefully get Spinraza! YIPEE!!!! Dad is showing us the flood bank of the river Maza and it is getting cold. We had a royal breakfast in the morning and my little brother loved it. When I was in the hospital with my parents, Borik was with Petr who has to eat two breakfasts because dad had a stomache :) The last stop before Oostende where I was born. The best accomodation in the world! With horses! We highly recommend!!! Borivoj joined in the farmwork straight away and started to cart the straw to the horses with a great loader. Mom was afraid that Witse might eat my joystick but we understood each other well... I cannot wait for another visit! Who comes with us? The second horse was a bit jealous, so I had to take care of him, too ;) ... We were riding high speed back and forth and then forth and back again This is it and the horses live right behind it. Exactly so! In the same house :D The trampoline in the ground is fantastic, I made my parents a little worried when I got on with my yellow-one :D This was our bedroom ;) The cheapest accomodation in Belgium. Morning exercise is always very difficult, the same for me as for dad. We both hate it! Dad is checking on what we are doing in the stables from the bedroom. Petr is checking us from the kitchen. And I am checking how the horses are training. This is where I was born! Oostende with double oo. According to the legend dad and Petr and Stepan were wandering around here. With a forehead light they climed all those towers. I drove through here but I did not get to the beach... I sank. This wharf wasn´t here. We will nicely drive here. Borik is tired, so he is probably carried. The sandbox is really big, but the wind is quite cold. That is a nose, right?! Dad carried me to the water. He has trained arms ;) We are picking shells for a necklace. Do you recognise? It is raining and ugly... Oh yes, we are in Wageningen, the Netherlands :) I spent my first half year with mom and dad here . There was some event on the square... Using various seeds we created pictures. We spent the night at Jaap´s family where I lived till six months of age. My very first shoes! We just bought them in Wageningen on our way from Belgium. What do you say? Have you seen Zootropolis? Ok. I am the sloth. or don´t you think so? No, and what about a monkey? :D And the fall came! The leaves are falling and I have a new red hat! The gang of the Nova street! And let´s go That´s us! Let it be snow or summer... We have a new service staircase. When I get stuck in the elevator, they come to rescue me fast!
And again on the rooooaaaad! This time Borik decided to ride in my stroller :) We are on our way to the Jeseniky mountains, we are going there for a week to visit our friends, yeah!!! When not exercising, we were dancing. I ate together with the boys, so that I enjoyed it more. and every night dad read some stories to us. Each time Kuba was next to me ;) Kuba, my big love. He is showing me around. I leaned back a bit for this picture, so it is all cool. We are here to pick up black and red current. He is a really cool guy! He jumped over the fence, flew past me and landed at the house. Really, no kidding! We got a permission to drive to the top of Praded mountain. It was wonderful, only the tower is quite inaccessible... Aunt took a group picture. It is hot but up here it was really windy, so let´s go back down quickly. A beautiful skyline. It is a pity that it is a bit hazy. Other mountains to go to next time. Hey, mom, and can I go there when my wheelprints are not on the picture? In a line with the other fast and strong engines. Dad was a bit nervous when I was driving around them, supposedly my yellow-one is not insured or what? My Kuba and aunt, oooh Going down was quite a workout, what can I say... I had to give a ride to some members of our expedition because of their exhaustion. Hmmm, time for refreshment. Dad, we have lunch and you ride your bike back up the hill and get the car, ok! We stopped at the spa Karlova studanka for a mineral water. Borik and dad are addicted to it. We all had some, mom and I don´t like it and the smell of it! They talked me into trying it and now look what it did to me! I fell to the ground. We stopped by the waterfalls and dad took me to the water, so that I can try how cold it is. I had to try whether the water in the waterfall is also mineral water and it is not! Dad is making fun of us! There are moments when it is just too much. I cannot wait to hold my head by myself! The seat in dad´s canoe is perfect, I even ran down the rapids :) We were at the Treetop Walkway! It is completely wheelchair accessible! We rode our bikes around the lake and drank a very good soda... My brother is incidentally and by his own interest becoming my assistant. Dad, is the carrier stalled?! Sometimes it is too much for him, so he just sits down... ...but he is the best! They get over every trouble with his girl-friend Aka! I felt here a little like in a plastic bag! Looking good, right?! Let me introduce you my little cousin! I love to cuddle with her! At the Lipno race they organised a donation for me. Recently, we broke the bottle, where the money were collected in. It amounted to around 500 dollars! We are buying the new track wheelchair ramps! This is how we prepared the bottle with money inside and then we... ...kept hitting it almost for a minute before it broke. I wanted to start counting right away but dad stopped me. He said I could have had a hand like a hedgehog full of slivers of glass... Elisaku, I will catch you! That was a beautiful decoration, right?! Dad, brother and mom were shining, as grandma says, like moon on the manure... Since I have BiPAP for the night and a CoughAssist during the day, I blow like the north wind! Boys from our street use my ramp like a start line! Yeah, summer is great! I really like to play "Sorry". My record is five sixs in a row. It is usual for me to have three in sequence. Noone gets it. I do, I have a special SMA power!
A little workout with my uncle Vavra at his Kayak Beach Bar. Because when I get older, I will be a kayaker, too! Swimming in the river. It is sooooo coold but so much fun!!! A beautiful campsite in the Bohemian Forest. Dad got my wheelchair there. It was bumpy a lot, but I felt like a Native American in a teepee :) Unfortunately we couldn´t spend the night in one because an extra battery for my BiPAP would be needed... Primarily we were there for the wedding of my dad´s cousin Stepana. It was wonderful! There was a stream with cold water and I love that! I love to cuddle with my brother, we call each other a wife and a husband ;) My friend Marketa, with whom we write letters to each other, and I take a rest in a park. Leave us alone, dad, ok?! With another of my friends Denisa we were running away from dad and were rascals. When I am standing, I am really tall!!! We are on our way to pick cherries. It is quite demanding to be in the stander every day, so it is good to take a nap time to time! Finally I am testing the new TOSCA device in the hospital with my dad. They put us in the purple room! YEAH!!! TCM TOSCA can measure the level of CO2 in blood and just with a little thing tight to a foot. Isn´t a great! We got it for Motol University Hospital thanks to the fundraising project "Each basket helps"! Finally on our way to the sea. A break in Slavonice! A beautiful place with great ice-cream at the main square. Just take it easy ;) The houselord Petr. He prepared a wonderful feast for us and we were nicely refreshed before our long journey. Lunch is a must and they had a lot of noodles here, so all is well! Traveling with auntie is fantastic! We talk over so much stuff, you´d be really surprised... It was a drive as long as my aunt´s legs but we got here and right to such a beautiful hut :) Let´s go to the water. This is our second beach. We decided that every day we spend at a different place. My swimming instructor Katka gave me homework, so I do them with my dad. He forgot a bit which made me quite angry! So I had to remind him ;) Borik is really a beginner. He is afraid of water. This is the farthest he goes. No kidding, it is the truth! Three, two, one go! I look under the water where it is safe for dad to step. Of course, because of sea urchins. Obviously my dad is not wearing shoes because he is a tough man who likes to be injured ;) Before getting to the island Korcula by ferry we have to take another ferry to the peninsula Peljesac. My dad admires the incredible architercture and I have to pose! Such fast machines, right? I am really excited that I will get one more speed for my birthday! Borivoj just adores motorbikes, even so much that mom is a bit nervous about that. The ferry is coming and just a moment ago dad gave me my first ever sip of Coca Cola. That was something when mom found out :D The ferry is not really wheelchair friendly, next time we will park better hopefully... It is nice inside. We cannot wait to get our ice-cream. It is really hot. It is nicely windy in the shade. and we go, in an hour we get to the harbor. It is really important to exercise the tongue and that is also the only fun stretching. At Korcula Island. A beautiful town, the narrow lanes have quite smooth surface and most importantly, it is quite cool which is exactly what mom needs. Whereas I fly from one shop-window to another. Not really excited about the overheated square, so we pose for a picture! I am choosing sunglasses... I looked really good in those. What do you think? Finally we arrived to Josef, my first summer love and his great sisters! It was a wonderful visit, thank you! It happens, that even aunties is not in the mood. But we got to a fantastic fish restaurant in Draca on Peljesac and her mood got much better ;) This is it. Because of it we stopped. Fish soup, I just love it!!! We planned to get to Montenegro but we ended up elsewhere. Close to Dubrovnik at a rocky coast which is just perfect for wheelchairs :D In my opinion one of the best beaches in Croatia. There are fish, octopuses, caves, big stones in the sea and many tiny snails on them. Do you see them?! We made a racing track for the snails with a starting line, then we bet with dad which of them will be the fastest. The only entrance is not really ideal for wheelchairs. And this is a more accessible beach. At the beginning of the climb we are all smiling. At the end it is just me. The others are totally wet again :) I feel really strong in Vavra´s sunglasses. We liked this place very much and stayed two nights. I became an entomologist. All bugs like me like this one.Very often they sit on me. Borivoj would like to have a red moped. The yellow plastic one is not enough, mom! I´ve overdone it a bit in the water, so I have to get warm on the asphalt. Leave me a little longer here!
Spring and no cough hopefully
In Troja I climed to the tree with my dad and Marketa!!! Cool, right?! Thank you C1 women for the beneficial sale of sweets and handmade crochet hats! At home we broke the bottle with a hammer. My dad is not really experienced in this. And we found 20 thousand crowns inside, thank you! With Izabela and two Vaclavs :) We go swiming once a week with the instructor, Katka. So far we went only twice... because I am coughing again, but hopefully we will go next week! The gang of our street! When replacing the old chickenhouse with the old one, we found a hedgehog house. We moved the egg-eater far away;) This is when I rise and shine! My great friend Eliska with her magic hair If you knew where I am sitting and what I am doing... At grandpa´s barn there is a great surface for fast rides! My little brother brought me green pills... Speed is the second me! Cross-country is not a problem. A good thing that I have such a chair... which leaves pretty traces everywhere it goes. For about half a year we have a new car which remodelled for my needs. The seat in the front can be turned out... and there is a ramp in the back. There are movable seats and anchoring system. I can stay in my wheelchair if I want to! The car is being tested by the first long drive to Liptovsky Mikulas, Slovakia. I sit in the back with Borik, my assistent and cough assist. Well, Borik sits everywhere.... It is quite a long drive. That´s why we need to cough well. I have been coughing for two weeks. I hate it so much. In Slovakia enjoying the mineral water spring. We came to support Vavra in his contest for the Olympics. Go! Go! And he is in the semifinal! We can head back to the guesthouse. Where we eat porridge and some piggies daddy´s toes. The next day is even colder and we are even earlier at the course. It started to rain again. My favorites are going through the course... I cheered for Vavra as much as possible! Vavra is in the finals but Vitek isn´t! So close.... It was a bit of bad luck, dad was sad. We are going to a caffee to lift our mood! I love this the most of everything and only my dad can do this! Up there that is where I will fly?! I have Vavra´s medals around my neck. Gold and silver! Borik is starting to join us and sometimes he is really helping me a lot! Before we leave, a nice ride in the mud! Grandpa wanted to hike the Baranec mountain which my great grandpa measured, well, and I watch him from the dam Cierny Vah. It is a great place! It is wíndy but it is ok in the sun. The tires are almost clean, so we can go back to the car! A motorcyclist! Well, I don´t enjoy family pictures that much... Our Slovak friends and guides here. but I love riding in the mud puddles. Borik threw his stick boat to the dam but it got stuck. Fortunately our guide... the new European Champion saved the boat and let it float :)
Trips and pneumonia...
Winter idyll in Kubova Huť. We headed for the ski-slope. We went down really fast. Next year I want to try skiing! This time we managed to stop. At a cafe in Prague. Except for one step it is wheelchair-accessible. The airport, it is great fun! With grandpa we set off for a cafe in the next village. On the way back home. My new stander! Bantam :) We are waiting for the Headpod adapter! My little brother and I like it the most falling asleep together, although sometimes he is quite naughty... When we lay down with Peppa the Pig that is really relaxing. With one special touch I can put her to sleep, so that we can do whatever we want with her :) She loves when I rub her chin! I just love Mouk, it is a pity that stopped streaming it on TV. Does anyone know by any chance where I could buy it? On our way for a walk in Chuchelsky haj, a grove near our house, wonderful for a wheelchair ride! I have got new neoprene shoes over my feet orthoses and Borivoj is swinging like a freak! Mom, I will not get up there, but take a picture of me here! I will not climb over, but I want a picture! In March a RSV virus got me. It was dramatic. A good thing that University hospital Motal is just 15 minutes drive away. Watching these three figures is just as stressful as watching Vavra at the Olympics. It is a drama for the whole night. Thanks to the children pulmonary department we are back home.
My dad made a sledge from an old car-seat. We could go really fast :) We just stopped under a very long downhill. My mouth has just frozen ;) We were starting at the highest railway station in the CR. There was a snow calamity and I got to sit in the heated handcar! Borik was afraid to get not only into the handcar, but also on the sledge! Getting up after the nap in the mountains is really tough ;) On our way from the Kubova Huť we stopped at grandma´s cottage. It was really cold, so we were near the old stove all the time. Travelling around the snowy Bohemian Forest is beautiful, especially when you see a lot of animals. Our next stop was the cottage of my second grandma in Jicin. Thanks to you I have a new adjustable and suspension bike carrier with a wonderful fleece bag which I truly love! Thank you!!! With Elza the monkey we went to look at the rocks... where Vavra was shooting a new movie. With the stick I trained my animals on the way. And here dad and I had a snowball fight with mom. We tried to climb a few steps, but it was really slippery... In the spring we will go through in the Upsee, I am really looking forward to it! Who is coming with us?! That´s a snowman! We burnt the coal and the animals ate the carrot, oh no... This is how I frightened Borik, he was really scared :D Uaaaa Borik managed to stay in hospital only thanks to the documentaries about where the eggs come from... My little brother eats just only eggs. Do you have any idea how many eggs he can eat per day? I had to advice Borik how to lie in a bed in hospital :) Booooring!!! There is still not enough snow... I had a great visit - Pepa the cat. We bought a new bigger Upsee and the small one we gave ... to little Izabela who can sit and hold her head very well!! You see how big I am? I grow really fast but I can still sit by myself for a bit!
Peppa needs new straw. I would love her to sleep in bed with me, but mom wouldn´t like it... Here you are a stack of straw. Peppa comes out of the straw and hay very warm. I have to take a nap after lunch, so that I can rollick in the evening. We had a good time reading with Marketa. Three choirs, Beatles (me), Chicks (a yellow skirt) and Primroses (aunt) I was singing with the choir and, although I did not practice much because of the cough, people heard me:) The benefit concert was in St. Salvator Church and Tonca was next to me, in case I wanted to drive away:D Look at the pretty skirts we have! The church was full and the Chicks were singing beautifully. The stars of Primroses, where my aunt sings! Dad and I went upstairs to look at them. Another benefit event was a cultural event in Vrane. It was just wonderful! Great people, great place, great atmosphere! Children from the local school made an exhibition of which I was the topic. It made me a little nervous, but some of the pictures I have displayed at home. Thank you! Unfortunately we came a bit late and there was not much room to move around with my wheelchair. At least we saw part of the show. Local guys are drinking the soda, so I had to try it too. It was really good! I met Ruth who has the most rare disease. Later I visited her at home and we played at princesses. The Superkaple band from the local school. Really good! And the guitar player looked like my favorite hero Pepa from the Three brothers film. The Superkaple band from the local school was really good! And the guitar player looked like my favorite hero Pepa from the Three brothers film. It was a wonderful night! Where an incredible amount was raised for creating a special parking place for my new car with the ramp. After we left, the amateur actors were watching ice-hockey :)
Christmas, New Years and trips..
It´s great with my uncle! My brother Borivoj truly loves Peppa and she loves milk! I can walk on all four! We had a Christmas performance at my preschool and it was great! I had a lot of fun! I am a special little angel with wings on the belly :) When I want to, I can sit by myself for a long time. It is a pity they did not put something under my knees. It is quite difficult for the hips this way... Christmas bike ride. We were at grandpa and grandma at Christmas Eve and the Little Jesus brought me more things then I wrote him for. We got the same earrings with mom!:) I am not either Pepa or Matej boys anymore, I am rather starting to be a princess! A visit of the Brevnov monastery. I don´t like cobblestones! It is difficult to find a good trip for a wheelchair ride! Do you have any tips? Is she explaining something again or was it a kiss? We went to the Prokop Valley by train with the wheelchair for the first time... I almost short-circuited the wheelchair when driving near the water... I pulled the stones for throwing into the water in T148 from the near-by quarry ;) Borivoj loves the elephants and I do, too. This is an elephant that can move its ears! On the way home, I met boys to whom I gave a ride around the train station for free... I am looking for the train. Careful, this stop is in a turn, so the wheelchair can easily get into the gap between the platform and the train. The next day, we went to Petrin tower. The maze in the park is with perfect asphalt! Surprised, where I am? In the "twenty"! Not really in the mood for a picture, right, brother?! Let´s gooooo. The best is to touch everything! Time to time some hand gets stuck somewhere... but I have them complete still, look! This is how I shovel snow!
This is my new elevator, it has three stops! I drive in and press "3". And then I am going back home from grandma. Because I have the elevator, I can drive to Motol hospital, for instance. Today we are here because of Long-ears. Do you see him lying on the table? It is a heart attack... He is ok, now, so we are going to the playground... They have a new playground, so I am running away from mom and dad! I received a wonderful gift from Pavla! Thank you! We like very much going to see the bears in the town of Beroun, we also have to check the sandpit. Look, grandma, I sit by myself! This our Peppa pig! E.T. where are you, friend? Don´t worry , guys, this is still not the maximum. Hi, come here. We visited a friend and she gave me a ride on her horse. With my friend, Iveta, we go to hippotherapy. Dad like billy-goat (beer). And I do horses :) Visiting my aunt Tonca. I will eat yoooooooooooooou!!! We do Movember with dad. When they set it up right, I can drink by myself ;) The boys are rascals, but they make a good tea. Cousin Vojta has first birthday and I am helping him to blow out the candle. After the celebration we watched a movie with my cousins and had "popcornt" :) The wheelchair´s width is 58 and the door is 60 - I do it myself. Why (in the insurance company´s opinion) only children above 10 years can have it, I don´t get it? My assistance pig whispers about new rascality! This will be our secret;) Her snout is really soft! I have a great little brother, a memory pillow and mattress. I cook every day. I am just preparing a real specialty! I am quite a strict chef!
Summer and fall 2015
I like very much this dress from grandpa! Dad took this photo of me in front our fridge for the card of a handicapped person:) Our beloved great grandma is reading with me, although she doesn´t see much:) I demand reading, it is great fun. We were in Croatia by the sea, however, I couldn´t swim much because I had a cough. Drawing is fun even for my little brother, only he has the paint totally everywhere. I would love to have such a bike carrier for my size and with the sprung suspension! Before the trip to a hairdresser. A stroll in the woods. This is my buddy Matyas! We stopped by an anthill. They almost got into my stroller! Little bad guys! The trees are so small?! Dad, I am not afraid, once again! Again! Again! It´s just perfect! Up till this moment I was afraid of them. But this is where I found out that they are good. We are three, not brothers, but water goblins! Dad, are we going into the water? :D Dad was cold, but I would be in the water until now but we didn´t have the flotation ring... After swimming I was getting warm at mom. Dad used to have such a swing when he was little. I had to try it out then. This is a little carrot. Rascals like me enjoy doing such things very much! There is poo everywhere on the ground :D
In a lift :) We arrived at the Great Salt Lake and it is hot! I am teaching Borivoj how to walk down the stairs... We are on our way to the far-away lake, it is above 40°C, so fast! After the adventurous experience I see the first buffalos! I give a bit of straw to the horses... Our first hot springs! I love changing cold and hot water... We are picking the best pebbles and checking the surroundings! We got a tip for great wild berries. We cut them for the road! We had red light... somewhere in Idaho The dusty road to the mining ghost town Bayhorse. No rooms available here... The mill does not work anymore, but it is still beautiful... We continued further uphill and got to a mountain lake, which was obviously full of fish... We found a place, where we can get into the water and we enjoyed it! I did not want to get out of the water, so I went with mom, too! It was too cold for Borivoj, so he had fun around. On our way back, we stopped to have a look at the mine lift. We are experienced paddlers, so we got on the river Salmon, which is running under our windows. Getting off is a bit difficult at first. I loved it totally! In the end I also swam in the life jacket in the current. Mom is having difficulties with the tube, but in the end she worked it out. In the town Stanley, which is really small, they have a delicious ice-cream! Aunt ate so much, that she got cold! This is the inflow of hot spring to the river. The hot water runs through the pipes to the pools. Sunbeam hot springs. Pebble pools are full of warm water. Borivoj just loves warm water! We are hiding under a stone and pulling hot stones out of the water. The French hot springs near to Sun Valley... It is wonderful for stretching legs. Those are the warmest we have been to so far... Always fun with aunt We had a great time in the Redfish Lake visitors' center. But it was even better at the beach. The water was refreshing. We played our favorite game with pebbles. I pick the best one, I can lift and then let it splash! In the end we checked that there is no dog drowning. At the cabin I counted how much money we have got left. On our way to Montana we stopped at a playground, where cut tires were on the ground, so we were completely black... The next stop on our 6-hour drive was somewhere in the fields, where I needed to use the potty. Here we are already in Bozeman at a playground. We were in a bookstore. And then dad bought kari and I had to try :) So this is where we were staying in Montana. On the trampoline! Tongues out! With the family that took us in. Dad, who carries us... On a walk to a waterfall. Borik and dad had to go nearer... mom and I just watched from a distance. Yellowstone!!! Mom, and why are the trees dead? I can smell something around all the time, sulphur or what they say... Dad and mom find it great, but I am more looking forward to seeing the animals... I can smell that thing everywhere! It is just an awful smell! We are throwing "ships" to the waterfall. Finally the evening and we are at the place, where the animals might be! Pronghorns just from the distance for now. Later we saw them really close! So this buffalo male looked into my window just from a meter away! I was counting his antlers. On our way home after 9pm suddenly a herd of buffaloes blocked the road. The calves play! :) Firstly they cross the road to the one side and then ... two buffaloes decide that it is time to go back, stop the traffic and wait for the whole herd to cross back! The last mohican with a hurt leg we saw on a bridge. Good night, Yellowstone!
I am miss Chiquita! We are on the way to a concert in Glenwood Springs and Bořek is running away all the time! Here we are listening to the concert, next to us is our dear host Bob:) We were dancing a lot and stayed till the very end! Bob took us to a local preschool, where I told the children where I am from. The greatest thing in the preschool is the water table! Painting on the tree is also great! I did by myself! We explored the preschool castle and checked the little houses... Come on, dad, let's go!!! Dad is quite nervous, whether I fall down or not, it is just a matter of time ;) We sat for a bit in a beautiful little garden... The bump on my forehead is almost healed! Mom does acupuncture every other day with me. We are leaving Colorado, going to Utah. Where are the bees? We are having a typical American lunch... We found this from the highway and swimming was forbidden ;) We had to overcome these hills to get to the desert. We are going and there is no one to be seen. Do we have enough gas and water? Borivoj was unstoppable at the end of the day, so at least he holds onto the window :) First one of the very interesting rocks in Utah, we had to stop. They call it the Native American Newspaper. No one has deciphered it so far. Dad, I think I know what that is! It is green around the river. Cowboys used to live here... and get here with the stroller in 40°C was hard work. This is the oasis in the desert. Water springs from the rock. The Native Americans draw something here, but mosquitoes are biting us awfully! Dad, let's go! Dad would like to see everything, he was totally excited. We were hot. You can see the Needles in the back. There are thousands of such rock formations. A great cheap motel, where we stayed and swam for two days ;) There was a black widow in the corner of the swimming pool. You should not touch anything in the National Park Canyonlands, dad! Aaaahhh, let's go to the viewpoint, my little brother! We were all here and it was hot! Dad, are we going to climb down? The red rocks are charming! The Delicate Arch Aunt makes fun in the back! Right now she has 14 crackers in her mouth :D Yeah, the new potty is wonderful. I really pee! It was gorgeous here, now somewhere else, where it is not so hot...
So we are in the States and we rent a big car. Borivoj is hidden behind me! We are sitting on the terrace of a swaying house. We have only few photos because we are trying to film. Borik is helping a lot. We had a similar view of the Kansas City from our terrace. Dad is having fun in the brewery and we are walking around. I see a big city - Kansas the city of rabbits :) This is totally wondeful chair! I managed to sit in it for about 15 minutes!!! These are my beautiful girl-friends! We were at Lauren for dinner. I want a dog, too! And we are on the road, there are two days of prairie ahead of us. Good thing we have my aunt with us, fun time is guaranteed! We spent the night near a big prison at a nice couple. You can see my bump on the forehead... Finally, we are having the much-desired hamburger! Borek would rather have something sweeter ... and prairie again... Dad gained weight a bit here :) Denver, a very nice city with a great fountain!
At the new sand-pit with Marie who visits me with Elisaaaak! Flying X Standing We are about to run away with Elisak, we might even take the train ;) Now brother Honza swings us, brother Pepa and brother Matej (Czech movie) We love to play hide-and-seek, I even let them close it and then not a word :D We went to give support to Vavra and dad at the races. It was great fun! Borivoj ate all the snacks and is about to eat dad and mom. First, mom taught me how to cheer and then I was cheering the loudest for Vavra! Hey, no water in the course. That is my little Borivoj! The last three weeks I had a cough, but it is good now!
A fundraising event organized by dad´s students. You can see how hard they worked on it. (“Do you know Bozhenka? – No?! – Then stop by.”) I got also a picture where I am on a swing with Peppa Pig. Krav Maga workshop attendees. We missed some of them, though, because we were late as usual – daddy is really slow. So taking picture with those who patiently waited;) That is my new car-seat which has a lot of equipment in it. Check that headband! My new toilet chair which is superb and I can finely make that special splashing sound ;) We are enjoying commuting with the new stroller. I like my new stroller. I also love its purple color! My grandmom´s house. She loves to come here and meditate. We came to enjoy the beautiful nature, had a snack built a sand castle and went home to exercise.
Spring trips and the dog
We are crazy girls from Zbuzany with my aunt and her friend :) I got a new car seat from foundation Život dětem... I fit in perfectly and it has a superb sound system in it :) We are going for fresh squeezed juice! We are really enjoying this B-cake week. First B-day has my uncle Vavra, next day my brother and next day my Mum! And of course I can eat the cake alone! ;) We are really enjoying this B-cake week. First B-day has my uncle Vavra next day my brother and next day my Mum! And of course I can eat the cake alone! ;) We went for walk and dad bought a beer and a sausauge for himself and for us sweet swab which mum had to eat because I didn´t like it... We were waiting for our train... And took my favorite one! It is named City Elephant and I love to sit independently in it... We were on trip with my friend Jóža Hradilková :) This is a railway terminal where the trail begins This is another cake and I am eating it with my favorite great-grandma! This is from our first experience with spa Marianské Lázně and it was great! Bořivoj, I can also ride on dad, look! Imagine how superb this city is, there is mineral water for free from a tap everywhere! And my dad and I like it but mum just say bllllléééé :) That is just clasic chill out in spa :) Easter is coming and I am preparing first pomlázka (traditional willow stick)for my brother ;) So this is assistance dog Jeff... He was at our home with his master to take some photos of the two of us... I would like also a dog like this! because you relax together!
Funeral and preschool
We were at our friends in Austria. We lived on a farm, where they have very nice horses and spookier cows! Well, personally, I am not afraid of them, but I don´t want to see them! :) But I love the horses even the biting ones! We set for a walk to the mountains to get a glimpse of snow! It was a sunny but chilli day. Dad took wrong shoes for a walk in the mountains, so at one moment he almost let us go down the valley! Finally on the snow! All the time sweet old Lumpi kept us company! Sometimes I can sit without any support, even when I am totally tired... Check the lights! Cool ha?! I have great power at once! You can see a broken saucepan on the table. With this machine I can also move the furniture :) Or I can give a tour to my visitors! Quite often we cook with my dad, here we are cooking potatoe pancakes. I have a new apron! Would you like one? This bag is just perfect for my little brother, Borik!
That`s my favorite frog pyjamas. The winter is difficult, cough everywhere. One gets so sleepy that one falls asleep wherever possible... We collect the eggs here which is great fun especially when dad forgets tham in the pocket and then I have to tell him that we can NOT say words that he said. Your guess is right! I just love dogs! Well, of course, my brother is a sweetheart. I love to give him a ride on my chair but I have to hold him tightly ;) I can manage all of these! That is not a strong statement you have to visit us to see who is the BOSS in our family ! Here I am taking my cousin Pepa for a walk. and I have to show you also this thing. COME ON!
New power wheelchair
I love Upsee and even more, when I have visitors, who go for a walk with me! First, we take a tour around our appartment and then, for example, we jump like frogs. After a bath I always want to throw a splinter into the stove and warm up. Here we are having a good time with my aunt. Each time uncle Vavra brings me my beloved Peppa Pig from London. Here with the help of Peppa I am making a frog out of myself... I do not enjoy exercising on my belly very much... Yesterday we watched Nikita and today we ran out of plaster with pictures. I have to draw on them by myself! When my little brother cries, I pull him around with my chair. He really loves riding his truck... With my grandmom before an advent concert, where I went with my other grandmom. Cousin Pepik, brother Borik and "little girl" Bozhenka ;) So this is it. I set the wheelchair with a screwdriver. Firstly, Borek tests it and then I got in charge of driving! The mini joystick works perfectly, ritght now I am making circles.
The beginning of the month was tough, but Peppa Pig and Cough Assist help us quickly to overcome it! Somethimes I just wake up in the middle of the night and I complain till my working dad plays a fairy tale... So, when I have a bunch of Teddybears and my aunt around me there is a lot of fun! I foretell you sweet life... My little brother sits for the first time and I have to do so as well! We went to feed swans and seaguls and on that occasion we took a picture like tourists :)
I will be an elephant only if I get a candy afterwards!? Ok, daddy?! So this is it, our elephant, or rather a trunk... So far we are only learning. My aunt paints my nails, I bite them and dad and mom are unhappy to see that. Here you can see a bit different trunk. Because today I bit through the mask with the air hem which makes it fit tightly:) After nice respiration it is time for a candy party!
Upsee and autumn
Today I felt much better and thus we went to try Upsee outdoors. Pebbles and then whoosh to a muddy puddle! Dad, that is fun! Now that way! No, that way! I am addicted to children and my name is Gumisek. He came to us with his rider from the woods and he was incredibly cuddly! Bathing in the sun, meadows near Karlštejn. Last weeks were tough, so I slept where I could... With my aunt celebrating the origins of Czechoslovakia. We are going to celebrate at the playground! And so we celebrate! Proper swinging! Hi grandmom, how r u? We have got a new Tatra 148 with my brother! Note that I can, at least for a little while, sit on the deck:) It is great, when my brother can, I must, too! Uncle´s earphones are simply great! La la la
Turkey - relaxation before winter
Granddad, Turkey! Let´s go to the sea! I was at a curative stay in Turkey, on the beach from sunrise to sunset, yawn! The sea is really salty as you can see I tested it thoroughly with various cups and buckets. I also swam in the sea, but noone took pictures of me because they could not resist and always went with me. Dad, I want to go to that one! No, you really cannot go on this one, it is from the age of 18 and children under 10 are not allowed here, so choose a different one :D Gooooooooing!!!! Daddy, faster! Take a breath! And plop! More, daddy, ok?! (We did it four times, then the responsible manager stopped us by warning the nice lifeguard). Thank you, Mohamed for letting us go! After swimming we are taking a nap. Pull, daddy! Turkish horses are untamed and my aunties, too. A cake with two candles awaited me in the hotel, I blew out both. Look! That is a nice blow, right! That is the sea air. With my mom on a green rocking earthworm By myself! On a red fish! I am a princess Monjus and this is my little brother Boricek. I just had a "coffee" and fed the sparrows. The best relaxation is to hold my brother. With my cousin Pepicek after swimming in the sea, where we were splashed by a wave... but otherwise having a great time. With the sunrise I am getting a bit tired, but more importantly, I was told that we are going home...
Spring and summer 2014
This spring I underwent a sleep study. And it was not very good sleep with all those wires... In March my little brother, Borivoj, was born. At that time still harmless, now he tears my hair. We got a new striped couch which is just increadibly comfy:) With my gang in the streets of Zbuzany. In the morning they tell me that I am the most beautiful, it makes me quite angry... Yep, it is an advanture for me just to sit on a bench. One never knows when I fall over. YEAH! The SEA, we just love it! New Jersey Shore. Fun at the bird observatory at Cape May Yeah, it was so windy there, it was great. On the ferry on our way to DC. Hurray to the conference! I love picking and throwing of little stones. At the Walden Pond. An American bulldozer. I made my dad happy, he would not get up there without me. Riding Mana with my aunt Elishka. I love horses! Swimming with my mom at a flooded quarry in the southern Bohemia. I really like painting, and that is on everything and everyone. I can be strict. At the cottage in Doubravice, southern Bohemia.
The postcard from USA trip Ready for another bike trip with my dad and little brother. Mom has always hard time catching up. The movies are so thrilling! I would love to spend a whole day like this! If they just let me! I like to drive my granddad's car. When I have my own electric wheelchair, then it will be the real driving! One gets tired after exercising... I go to measure water reservoirs with my dad.